It took dozens of vision tests to find out what was happening to Logan Galloway’s eyesight. Ultimately, he was diagnosed at 3-years-old with an extremely rare genetic eye disease called Leber Congenital Amaurosis (LCA), Denver’s Channel 9 News reports.
Shortly after Logan’s diagnosis, his younger sister, Zoe, was also handed the same news at the age of 3.
“It was a kind of a double heartbreak because we thought, well, Zoe’s gonna beat up all the kids that pick on Logan because she’s kind of our bull in a China shop,” their dad said.
It was heartbreaking because there is no cure for LCA.
“You feel guilt as a parent because you brought these children into this world and they’re going to struggle,” Michael Galloway told Channel 9.
During the pandemic, those learning struggles were only heightened with the introduction of online learning, which is very visual. But Logan and Zoe have adapted, and their parents are now organizing to help other Colorado families.
“We also decided it was time to fight for our kids and find a cure for them,” said Allison Galloway.
The family has formed a non-profit organization called RDH12 Fund for Sight, put on an annual 5-K run to raise money, and hired a Ph.D. student to conduct a clinical trial on LCA.